FOR IMMEDIATE RELEASE
Media Contact: Megan Cooper, Camp Hendon, Executive Director
LOUISVILLE, KY (NOVEMBER 20, 2019) – Camp Hendon, the Kentucky Diabetes Camp for Children, is pleased to announce it has received a $2,500 grant from the ARGI Gives Community Grant Program. These funds will support the purchase of low blood sugar treatment supplies for children with Type 1 Diabetes.
Camp Hendon is a medically supervised summer camp program that works directly with children ages 8 – 17 living with Type 1 Diabetes. Type 1 Diabetes is a chronic, autoimmune disorder in which the pancreas fails to produce life-saving insulin to regulate blood glucose levels. Low blood glucose is a deadly condition that individuals with Type 1 Diabetes face every day, often multiple times a day. If left untreated, low blood sugar can lead to unconsciousness, seizure, and even death. To correct a low blood sugar, fast-acting carbohydrates or simple sugars must be consumed.
Financial support from the ARGI Gives Community Grant Program will allow Camp Hendon to purchase life-saving low blood glucose treatments, including glucose tablets, juice boxes, and more. This funding will also be matched dollar-for-dollar by the Novak Family Foundation.
“If you have a loved one with Type 1 Diabetes you know that having a juice box or pack of fruit snacks on hand during a dangerously low blood sugar can truly be the difference between life and death,” says Camp Hendon Executive Director Megan Cooper. “We could not be more thrilled or grateful to receive these funds from ARGI Gives to help us purchase low treatment supplies.”
ARGI Gives awards quarterly grants to nonprofit and charitable organizations through a competitive application and review process. “Health and Youth are two of our focuses for ARGI Gives,” says Emily Trujillo, PR and Communications Specialist at ARGI. “We’re honored to partner with Camp Hendon to provide these critical medical treatments to children in need.”
About Kentucky Diabetes Camp for Children, Inc. dba Camp Hendon
Camp Hendon is a 501(c)3 nonprofit, tax ID 27-3619275. Our mission is to give children with diabetes life-changing experiences, empowering each of them to take control of their unique journey. Family Camp will take place from May 9 – 10, 2020 at Aldersgate Camp in Ravenna, KY. 2020 summer sessions will take place June 28 – July 3 at Camp Loucon in Leitchfield, KY and from July 12-17 at Aldersgate Camp in Ravenna, KY. Children ages 8 to 17 with diabetes are welcome and financial aid is available. Visit us online for more information at www.CampHendon.org. Connect with us on Facebook, Instagram, and Twitter.
About ARGI Gives
Founded by ARGI Employees in 2015, ARGI Gives brings together the time, talents and resources of our company through a corporate giving program. Our mission focuses on improving the lives of other members of our local communities. ARGI Gives is overseen by a committee of a diverse team of ARGI employees with a common focus on positively impacting the community.
ARGI Gives is a corporate giving program, supported solely by ARGI employees. All operations and functions of this program are performed by ARGI employees who volunteer to serve on the Commitment Committee. Grants made through the ARGI Gives community grant program are completely unrelated to and do not influence ARGI's business decisions.
ARGI has been providing goal-driven comprehensive personal and business financial planning and wealth management to corporate executives, business and practice owners, and their families for 20 years. ARGI’s team of dedicated specialists provides financial planning, investment management, business wealth solutions, tax efficiency and planning, qualified plan management and corporate benefits education. Respective services provided by ARGI Investment Services, LLC, a Registered Investment Advisor, ARGI CPAs & Advisors, PLLC, ARGI Business Services, LLC, and Advisor Insurance Solutions. All are affiliates of ARGI Financial Group.
$2.1M IN 2019, MARKS $50M FROM COLONELS POSITIVELY IMPACTING NON-PROFITS SINCE 1951: CAMP HENDON AN HONORED 2019 RECIPIENT
FOR IMMEDIATE RELEASE
CONTACT: MEGAN COOPER, EXECUTIVE DIRECTOR
LOUISVILLE, KY – Camp Hendon is proud to announce it received a grant from the Honorable Order Kentucky Colonels (HOKC) in the amount of $3,710.47 to purchase low blood glucose treatment kits, including 10 collapsible wagons, 30 headlamps, and 51 lancets.
Camp Hendon, the Kentucky Diabetes Camp for Children, serves children with Type 1 Diabetes across the Kentucky region by offering medically supervised summer camps, family camps, teen camps, and other year-round emotional support programs.
HOKC will award $2.1 million in grants supporting 265 non-profits, impacting more than 3.9 million Kentuckians. This year’s total is a record for HOKC’s Good Works Program and represents HOKC reaching the $50-million mark since the Colonels became a 501(c)3 in 1951. Grants are made possible through donations from active Kentucky Colonels from around the world who chose to exercise this honor in a meaningful way.
HOKC Commanding General Lynn Ashton said: “We cast a wide net across the Commonwealth and across the scope of those in need from aiding the abused, to assisting the handicapped, to supporting crisis relief to historic preservation. Our goal is to annually grant $5-mlllion to worthy causes. All funding is generated through donations from active Colonels ranging from $1 to major gifts, so to get to that dollar amount we must reach Colonels not engaged with us.”
Those interested in being an active KY Colonel or nominating someone to become a KY Colonel contact HOKC National Headquarters at (502) 266-6114 or go to www.kycolonels.org.
Have you ever agreed to something, under the impression that another person was joking, and then realized too late that they weren’t? Well that’s what happened when my dad said, “Let’s climb Mount Kilimanjaro, you’ll already be in in Africa,” after I had asked if I could go on my school’s summer trip to Tanzania. He and I had never done anything remotely similar to this. We had hiked in the woods for maybe an hour or two and skied a couple times but I completely assumed he was joking. A couple weeks later the idea came up again, and then again, until I realized he was indeed under the impression that we would actually climb the tallest mountain in Africa. At that point in time I couldn’t run half a mile without literally breaking down in tears, so I was thinking No Way.
Two years before all of this happened I was diagnosed with diabetes. At the time I didn’t really know what diabetes was and they are now telling me I have a life long illness, you know how the story goes. But when I was in the hospital they made the point to make sure I knew my life could be “normal.” She’ll still live a normal life they would say to my parents, don’t worry. There were two things wrong with this 1. They told my parents not to worry, as if my parents could stop worrying and 2. They told me I could live a “normal” life. What if I don’t want a normal life. I want to live an extraordinary life. When I was in the Eighth grade I wrote an essay about why being called weird was possibly the biggest compliment ever! Since, I have never wanted to live an ordinary life, to me, this was the same thing as saying she will be limited. So when my dad presented this opportunity to me I eventually decided to take the challenge and be extraordinary. This summer I proved to myself and hopefully to many others that an extraordinary life is possible as long as we don’t see diabetes as an obstacle but rather a part of ourselves that we need to account for.
However, before we even left to start the route, we met with a diabetes educator and we talked about everything that needed to happen before and during our accent. She informed us that...
1. My Pump probably wouldn’t work over ten thousand feet so I would have to use shots up to 3 weeks before the climb to get used to them again.
2. Every day I would probably have to eat 600 grams of carbs in order for my Glucagon shot to work
3. My Insulin could crystallize so it would have to be kept above freezing
4. I could encounter Altitude sickness. Altitude sickness can cause dizziness, nausea, lightheadedness, loss of appetite, racing heart, heavy breathing, does it sound like anything else I might encounter? This was a big concern for me because I could be low, or high, or I could just be experiencing the inevitable altitude sickness so we would have to check my blood sugar and then check it again. I had learned to rely on how I felt so to know I couldn’t trust my body had me concerned.
5. The Chemistry of blood changes as you go higher in altitude so a blood sugar test could be up to 90% inaccurate at the top.
6. I needed to drink a lot of water or it could be very harmful to me especially as a diabetic.
7. This might be obvious, but if I don’t take supplies I need, I won’t have them
Now that I knew how to deal with this element that I had to account for it was time to prepare, before I would climb I would have to train. I would have to run some days and do long leg workouts others to not only see if I would be able to do the climb itself, but to see how my blood sugar would react to certain extremes. Over the summer my dad and I went to Colorado to train and test the altitude as we got to the beginning of the summit climb on one of the fourteeners my Omnipod failed. At that point I didn’t have anything to stop the annoying continuous beeping my discarded pod was producing so my father proceeded to smash my pump with a rock until the noise finally ceased.
We in theory were prepared but as we got on the bus Sunday, July 8, I all of a sudden had the feeling I was forgetting something? Did we have enough carbs, enough Insulin? What if the insulin crystallizes? Would I be able to tell the difference between low and high and altitude sickness? What if I have to come back down? This is all I could think about during the 4 hour bus drive to the mountain. The climb was 8 days and 7 nights total 6 days up, a summit, and 1 day down on the Lemosho route. We would hike anywhere from 2 ½ to 15 hours any given day and we would gain a total of 16,000 feet. Each day we would hike and stop at the next campsite where, along with other hikers we would establish our camp for the night. Even though some days were shorter they were just as important because it would give us time to acclimate to the new altitude of that nights camp. Our tent had a traditional two person tent, where we slept, hooked inside of a large tent which provided us with two kind of rooms the second of which had a table and chair for our meals. The space was tight and we couldn’t stand up, however it provided shelter from the bone chilling wind. We passed through almost all the climate zones. It’s winter there, because it’s in the southern hemisphere, so It was cold when we started, even colder at night, and colder as we went up, except for a random hotspot we found on day four. Speaking of hotspots, all though we didn’t have any access to internet, and were told that there wouldn’t be cell service we found that randomly I could call my mom from over 14,000 feet in the air. On occasion we would take acclimatization hikes which would help us to judge how we would react as the climb went on. The first night on the mountain my dad stayed up all night worrying about whether or not I had brought my glucagon shot from the hotel room, he hadn’t seen it with the other supplies we were keeping warm that night and began to worry. My dad didn’t want to wake me just in case something was wrong, in his words, it would be pointless for the two of us to be up all night worried. The next morning I woke up and showed him that I had brought it with me and calmed him down but this didn’t stop him from worrying. We were constantly worried about what could happen.
Knowing that each day I would have to eat at least 600 grams of carbs in order to replenish my glucose stores, which was hard due to the fact that my dad and I didn’t know what we would be eating until they had brought the steaming platter into our tent. My dad ended up buying more snack bars than I could count. We didn’t end up eating them all and were happy to see the children of Moshi Town, the town at the base of Kilimanjaro, finish them off for us as well as the cookies that we had bought at a local store.
In order to help my numbers stay in check it was very important that I hydrate. However, the nights were cold and full of much needed sleep so I didn’t want to get up in the middle of the night to go to the bathroom, I found myself chugging 4-6 liters of water, about 1 to 1.5 gallons of water, early in the day and drinking some tea after lunch and another cup with dinner. My dad and I would have fun competitions to see who could drink all of their water first, I only won once, and only because I had to use a lot of water to take my altitude and malaria pills. Along with my Malaria pills at night I took my Tresiba which I would often find, had bubbles that had formed from altitude change. I would always take a needle, turn the pen upside down, and dial the pen a few units just so I could clear the bubble out and still the very next day I would find a new bubble in my pens.
Along with the cookies we had bought a bottle of Sprite just in case altitude sickness got the best of me. Some of the more extreme versions of altitude sickness proved to be more common than I had originally thought. We passed many people who had to turn back because of altitude sickness, we even saw a lady power through some more mild symptoms one day just to have to turn around the next because she had gotten sick. Another time, 3 days into the 8 day climb, my dad and I woke up in the middle of the night to hear people talking on radios evacuating a man who, let’s just say, wasn’t having the best night.
Although we were prepared for altitude sickness we hadn’t really thought through where to put my insulin. When we got there we decided that during the day we would make sure not all of the insulin was in the same spot. My dad would have some and I would have others and some of it we would keep in our overnight bags that the porters carried on their heads. We would make sure we had back ups just in case anything happened to my supplies and back ups for my back ups. When we learned that our insulin could crystallize, we didn’t really know what to do. We didn’t want to sleep on it or with in our sleeping bags because we didn’t want to crush it. We eventually decided that the best place for my diabetes supplies was between our mattresses. On summit night, however, we could not keep the insulin in the crack because we wouldn’t be sleeping there all night, so we decided to ask the cook to keep most of the supplies in his kitchen tent where he cooked our dinner and small midnight breakfast over a small fire. We took one of everything up with us in pockets of our base layers.
As we ascended summit night we saw many people turn around and give up, we saw a lady whose friend had gone down proudly continue on. She hiked about a mile more and then gave in herself. We had an extra porter hike with us and our guides just in case they had to carry us down summit night. We saw people getting sick and I couldn’t blame them because I was also extremely nauseous. And to be honest no one would fault me for turning back. The thought had crossed my mind many times but each time it did I thought to myself, "I Can do it, I Can be Extraordinary." After we reached what’s called Stella Point, less than half a mile from the top the sun began to rise and all of a sudden I forgot about everything.
And I realized me, the 14 year old type one diabetic, who was told by kids at school that she couldn’t do it, I was just on top of the world, I was here, I had made it. I had proved that diabetes was just another element that I had to account for just like I had to train and physically condition for the trip, it wasn’t some obstacle that I had to let stand in my way until someone figured out how to fix it for me, it was something that I needed to figure out how coexist with. You don’t know what it’s like to work to reach the stars until you are on top of the world and you finally realize you made it!!
One week before my 10th birthday, my older sister was killed in a car wreck. Shortly after, I was diagnosed with Juvenile Diabetes, but at that time, the doctor called it “Rare Diabetes” which sounded even more scary then just diabetes. My father blamed himself; my mother was scared to death. Thinking the tiniest bruise could lead to amputation. Thinking that a single high blood glucose level would cause blindness. Thinking that her baby boy would never live old enough to be a man.
Not only was I trying to cope with the death of my sister, but I was also trying to learn about diabetes, and always wondered “Why me? What did I do wrong?” I’m from a very small town and it didn’t take long for all of the parents of kids in my class to quickly become afraid of having me around. Because you know, a juvenile diabetic can just die on the spot. People stopped inviting me to parties and social functions. As if just being in the same room as a chocolate cake would have the same effect of eating the whole cake. The lack of education back then remains today for people who don’t have diabetes, or don’t have a loved one affected by this horrible disease. And trust me, the comments I get add to the frustration of having T1D...
“Did you know cinnamon can cure diabetes?” Like, it took scientists from 1921 to now before they discovered cinnamon as a cure?!
“Oh, you have diabetes? My grandma had that. She lost a foot.” I have heard that one a thousand times, but they never tell me which foot...
My [least] favorite slap-in-the-face comment is: “Well, you don’t look fat enough to be a diabetic.”
Once you have diabetes, you spend the rest of your life trying not to die. Then it happened… we found Camp Hendon. Not only did camp change my childhood, but also it has changed my adult life. Now, more than ever, I need Camp Hendon in my life. It also helped my parents. It let my dad know that he did not fail me as a father. It showed my mom other moms who may be afraid, but were also brave enough to face the disease that is hurting their child. I am not a parent, but I know that as a parent, not being able to “help” your child can hurt more than anything. The amount of love, support, and knowledge you (and your parents) get from camp means everything to a child with diabetes, and as an adult, it is the most priceless gift from God. I don’t feel sorry for myself, but I do feel so sorry for the T1D children and adults that do not have a place like Camp Hendon. I’ve always said Camp Hendon is where a diabetic kid can be just a kid. As an adult, Camp Hendon is where the heart is. It is where I go to live.
Thanksgiving has always been an important holiday to my family. We drive to New York to visit my dad’s side of the family. There is a ton of delicious food, and it’s an opportunity to take a break from our usual routine while reflecting on what it is that we love most about our lives. I have so many fond memories from each of these trips. I could tell you about the hiking trip we took with my cousin Amy and her now husband Dennis; our times sledding in my Aunt and Uncle’s driveway; or the smile on my grandma’s face as we took her out for her birthday dinner the nights before we made our twelve hour drives back home. These are certainly my happiest memories from our Thanksgiving excursions, but the one I remember most clearly is our car ride home in 2004.
We were making our way down the mountain my Aunt and Uncle live on as a fresh bout of snow and ice blanketed the landscape. Ten-year-old me was sitting in the back seat, pounding two liters of Big Red and Coca-Cola. Road trip 101 is that the key to making better time isn’t to drive faster, but to limit the number of stops you take along the way. It’s hard to follow this rule when you have a child in the back seat drinking their weight in soda. That ride home went a little something like this:
“Guys, I’m thirsty!”
“Drew you just finished off another two liter”
“I can’t help it. I’m still thirsty”
“Okay, we’ll grab you something to drink when we stop again”
“Oh good cause I have to pee again”
“You just went not even an hour ago?!”
Wash, rinse, and repeat about sixteen times. My thirst was truly insatiable. My bladder was that of a squirrel’s, and to top it all off, I was a holy terror wrapped up in a ball of angry outbursts. It didn’t take long for my folks to realize something was up. Shortly after we got back to Kentucky they took me to see a doctor regarding what was wrong. That following Thursday, we had our answer.
I was admitted to Kosair Children’s Hospital, playing a Doctor Mario-themed Tetris game, when a young, dark haired doctor came in to deliver the news. The news that I now have Type 1 Diabetes. I was only half listening at the time because he had just handed me a groundhog Beanie Baby by the name of Punksaton-e-Phil (yes, I still have him). When I looked up and saw my folks crying I didn’t understand why. “What’s wrong guys? At least now we know what’s wrong. Now we can do something about it!” I said, trying to be reassuring. They were floored. I didn’t understand it at the time, but my reaction to my diagnosis was atypical. I never rejected the hand I was dealt, or got upset that I suddenly had to take a shot with every meal. When people referred to me as “the diabetic kid,” I would fire back with, “I have diabetes, but I’m not a diabetic.” It was a mildly inconvenient addition to my daily routine, nothing more; but that mentality didn’t last very long.
Like most people with diabetes, I started seeing an endocrinologist shortly after my diagnosis. Unlike most people with diabetes, I was lucky enough to see Dr. Mike Foster. It was Dr. Foster who ensured that I was taking the necessary steps to control my diabetes, empowered me to do so, and introduced me to Camp Hendon. It was Camp Hendon that revolutionized my relationship with my condition and helped to shape me into the person that I am today.
Without camp, I never would have met Cheyenne, my best friend of almost fifteen years now; I never would have found my place in the Type 1 community as a den leader; and most significantly, I never would have found the loving support network that I call my camp family. Now when I say “family” I mean that quite literally. They’re a community of people that understand me in a way that no one else possibly could. They understand the late night food binges when my blood sugar takes a nosedive. They understand the debilitating nausea, and irrational rage towards even the most insignificant things that comes with DKA. They understand it, because they live it too. That kind of understanding is indispensable, life changing, and fosters a sense of belonging I could only find at camp.
Nowadays, I proudly call myself a diabetic; but more so as an extension of who I am rather than my sole defining aspect. I am a diabetic. I am a diabetic martial artist. I am a diabetic graphic designer. I am a diabetic den leader to some of the best diabetic campers that anyone could ask for. If I had to pick a most important lesson that I learned from camp, it would be this: At its worst, diabetes has the potential to keep you from doing what you love, if you let it. At its best, diabetes is a badge of honor that says, “Yes I live with this condition. Yes this condition makes my life harder. And yes, I did just accomplish something great despite having diabetes because I refuse to let it limit the size of my goals!” Thank you Camp Hendon. Thank you for teaching me how to be a happier, more confident diabetic person. I’ll be thinking of you next Thanksgiving.
Hello! My name is Maggie Epperson. A lot of you reading this probably know me because I was a Camp Hendon camper for ten years, and this summer will be my second year as a Camp Hendon Counselor. I am a freshman at Johnson and Wales University in Providence, Rhode Island majoring in Culinary Nutrition.
I’ll start by telling you a little of what that entails: My first trimester consisted of academic classes, English, math, nutrition, etc. Now I am in Culinary Labs. This consists of going into the kitchen for six hours a day cooking, moving, and loving every second of it as I chop, blanch, shock, deglaze, and everything else.
And here’s a secret: I almost didn’t come here. Yes, I was accepted and even had a scholarship. But I almost allowed Diabetes to get in the way of my dreams. I was terrified of going a thousand miles away from everything that I’ve ever known. Scared of leaving my support group that is Camp Hendon. Yes, I know that my camp family will always have my back, but I was scared. Still am, in fact.
The reason that I am here at JWU is because of an amazing lady named Melissa Kleber. If you are a camper you probably know her as “The Pump Lady.” I was in Dr. Foster’s office last spring, still debating whether I should go to Rhode Island, or choose a safer option closer to home. Melissa comes into the room, and after giving me a big hug and telling me how proud she is of me, and says: “ You’re going there right?”
I told her I was still thinking about it, and then proceeded to tell her more about JWU, how a lot of the chefs are Italian, how there are all these different clubs and opportunities, all with a huge smile on my face.
Again, she asks, “Why aren’t you sure?” I said, “Because I’m scared.” Her next words to me were “Be quiet, stop right now with the doubt, GO. If you need anything, and I mean anything at all, call me and I have your back.” A few days later, I let the world know through social media that I was going to Johnson and Wales and I was going to follow my dreams.
I almost let diabetes stand in the way of following my dreams. Not to say that I don’t have my bad days, or that it’s easy, because it’s not. In fact, a few weeks ago, I was in labs, it was the end of the day, and we were getting our plates for family meal. My blood sugar plummeted, I was shaking insanely bad ( Y’all don’t even want to know the number, it was BAD. Yes, Leslie, I know, yell at me later), and I spilled my entire plate of pot roast all over my apron and jacket. I was mortified and mad at myself that I did that. But as soon as I explained what happened, my friends in lab checked on me, grabbed me more bread, and showed me that they too had my back.
So yes, to those reading this, diabetes sucks. I will be the first to admit it. But you are not alone! I still talk to my Camp family quite often. My message here is to not let diabetes hold you back from following your dreams. You will have your bad days, as we all do, but each day you get to start anew and make it better. You will be surrounded by people you know and love, and who love you. I’m not perfect. I’m still scared that something bad will happen when I am in labs, but I am becoming confident. I know how to treat my lows and high,s and that if something does happen, I have friends that will make sure I am okay.
To conclude, follow your dreams, no matter what they are. Reach for the stars. Nothing, and I mean nothing, can hold you back except for yourself. Even then, if you are as lucky as I am, you will having someone, maybe from camp maybe not, telling you to be quiet and just GO.
To my Camp Hendon family: I love each of you so, so much, and wish you all the best until I see you this summer!
Originally posted by The MediStar Awards
Leslie Scott, PhD received her undergraduate degree in nursing from Gardner Webb University and a Master of Science in Nursing from the University of Kentucky. She completed her doctorate degree in nursing, also from the University of Kentucky.
Scott is an associate professor in the College of Nursing, where she serves as coordinator for both the primary care and acute care, Pediatric Nurse Practitioner tracks in their BSN-DNP program. She is a board certified, primary care pediatric nurse practitioner with almost 30 years' experience as a Certified Diabetes Educator.
Her clinical practice is in the pediatric clinic at the Barnstable-Brown Diabetes Center. She has provided diabetes care and education to children throughout Kentucky for almost 25 years and has volunteered as a nurse/nurse practitioner at Kentucky’s Diabetes Camp for Children, Inc. (Camp Hendon) for more than 20 years.
Describe your philosophy on your role as a nurse and the impact you have on patient care.
I think the primary role of a pediatric nurse is to empower children and families to learn and master the skills needed to foster normal growth & development and optimize health. Growing up having a mother with type 1 diabetes, I witnessed the daily struggles and long-term complications associated with developing this complex, chronic disease as a child. I want to encounter a generation of children who do not have the same struggles in managing their diabetes. Through education, support, and advocacy I strive daily to change the lives of children and families who battle the day-to-day challenges of managing type 1 diabetes during childhood and adolescence. Fortunately, I learned early in my nursing career that incorporating knowledge of childhood growth & development into the individualized education needs of the child with diabetes is key to their learning the self-care, management skills needed for optimal daily diabetes control.
What steps have you taken to improve the quality of care for the patient community?
Prior to 2014, there were children in Kentucky with type 1 diabetes prohibited from attending school or participating in school-related functions, if their school nurse was not available to administer insulin on a particular school day. Unfortunately, not every school in Kentucky has a school nurse. One advocacy effort gave me an opportunity to provide information to the Kentucky Legislative Research Commission (LRC) describing the inequities in access to safe education experienced by school-age children with diabetes. The findings reported by the Kentucky LRC provided fundamental information that endorsed legislative changes in the provision of school health services. During the legislative process, I was able to advocate on behalf of school-age children through efforts such as speaking to the Practice Committee at the Kentucky Board of Nursing, addressing the Kentucky Legislature in support of HB 98/SB 30, and serving on the School Advocacy Professional Panel for the American Diabetes Association.
How will the results of this initiative impact the healthcare community?
Kentucky legislative efforts lead to the amendment of two regulatory statutes in 2014, resulting in changes to the provision of school health services for children with diabetes in Kentucky schools. These legislated changes allowed insulin administration by trained, unlicensed school personnel in the absence of a school nurse. This one endeavor has probably been the most impactful change to improve care and access to a safe education for children with diabetes in Kentucky schools. Through these changes, more school personnel are trained to care for children with diabetes rather than relying exclusively on the school nurse or parent to provide diabetes-related care at school. Having more school personnel knowledgeable about diabetes care improves support and safety in school for all children with diabetes.
What accomplishments are you most proud of and how did it impact your patient(s)?
Numerous opportunities have arisen during my nursing career. I have been fortunate to be able to expand from my role as diabetes educator to a role in developing the next generation of pediatric care providers. Because of my development of the primary care and acute care pediatric nurse practitioner (PNP) tracks within our BSN-DNP program, I have been able to merge clinical practice with teaching and mentoring of future pediatric care providers. Through my service with Kentucky’s Diabetes Camp for Children Inc., I have been able to provide an immersion experience for PNP students. Having a better understanding of the complexity of diabetes management in children may develop a more competent, compassionate provider. While I enjoy observing nurses develop advanced practice skills, witnessing a child grow, develop, and learn to self-manage their diabetes is an amazing experience. I am grateful for the opportunity to be a part of that experience.
"Kentucky Agency Owner to Receive Governor's Service Award for Work with Kids with Diabetes"
Originally posted by The Source, Southern Region Agency News for Allstate Insurance
"If you have type 1 diabetes and you're a kid, what you get out of camp is transformational. You realize that you're not alone. there are lots of club members who are all in the same bucket, and it's so profound for these children. It's amazing."
Kentucky [Allstate] Agency Owner Bryan Fallon has been selected to receive a Volunteer Service Award at the 23rd Annual Governor's Awards for his continued work and dedication to Camp Hendon, a summer camp for children with Type 1 diabetes in Kentucky, Southern Indiana, and the surrounding area. Bryan was selected to receive this honor out of 70 nominations from around the state of Kentucky. Over the years, Bryan has recruited agents to help as a part of the Helping Hands program. Last year, he and 10 other agents raised $10,000 for Camp Hendon.
The camp's mission is to "give children with diabetes life-changing experiences, empowering them to take control of their journey with diabetes" by developing, enhancing and increasing their management skills such as "carbohydrate counting, self-monitoring of blood glucose, pattern management, insulin action and self-administration of insulin."
"When diabetes is in your face, it's not fun. Nothing about dealing with dynamic blood sugars is fun. If you're a kid, you're constantly wondering: What's going on in my life? Why am I this way? None of my friends have this. My friends are going to think I'm weird because I have to do this and that at school. At camp, it's not like that. Everyone is in the same bucket. It's so profound for these children. It's amazing."
Not only does Camp Hendon aim to foster camaraderie among campers, but also to offer parents a break from the daily concerns of raising a child with diabetes.
"Every night of a child's life that has type 1, the parent has to check their blood sugar or the child may not survive. It's very possible that the child could die if they don't make sure Jimmy is all right. When a parent sends their child to camp, we do rounds. Everyone gets checked. Their kids are safe, they're having a blast, and mom and dad get a break. If you know a kid that has type 1, demand their parents take them to camp. The more people know about getting kids with diabetes to a diabetes camp, the quicker these precious kids can take the chains of type 1 off themselves."
The Governor's Service Awards will take place the week of March 26 at the Capitol Rotunda in Frankfort.
If you are interested in participating in a service event with Bryan, you can email him for more information. You can also visit the Camp Hendon website, or contact camp staff Lori or Megan to learn about their various volunteer opportunities. With the Helping Hands grant, participating in an event with Camp Hendon for four hours is $1,000 for the organization to help transform a young child's life.
"It's in her blood: Prince follows in parents' footsteps, climbing Brazilian Jiu-Jitsu ranks"
Originally Posted by the Carrollton News Democrat | By: Tim Hendrick
Cartmell Elementary fifth-grader Brooklyn Prince is not your normal 10-year-old. First, she was diagnosed with Type I diabetes when she was two years old. She has been wearing an insulin pump since she was three. But she hasn’t let that slow her down. She also is recognized nationally as an up-and-coming Brazilian Jiu Jitsu competitor with plans to compete in the national tournament in November.
Brooklyn is the daughter of Emily and Randall Prince. The family moved to Carroll County four years ago from West Virginia when Brooklyn’s dad came here to work for the now Dow Chemical site. Emily said there were a lot of reasons they moved to Carrollton from West Virginia. She said better schools, access to more diverse medical resources, family in the area and better Jiu Jitsu gyms were among the reasons.
A good gym is important when you are literally born into the sport. Randall was a wrestler during his scholastic career and he became interested in Jiu Jitsu when Emily was pregnant with Brooklyn, so Brooklyn has been around the sport her entire life.
Randall is working towards his black belt, which Emily said could take 10 or more years. Emily said there are not many belts to achieve, so getting to the highest-ranking belts is literally called a journey.
“My dad started teaching me the basics when I was little,” Brooklyn said. “He would be training and show me what he was doing.”
Brooklyn currently holds a grey belt and trains at Oldham County Martial Arts Academy with Aaron Burgin. Emily said they could not say enough nice things about Burgin. “He has been great to Brooklyn.”
Brazilian Jiu Jitsu is derived from Japanese disciplines. Emily said in the grand scheme of martial arts BJJ is relatively new, having existed for less than 100 years.
BJJ is ground fighting and is derived from judo because it uses throws to take someone to the ground and then uses Jiu Jitsu to take the opponent to submission.
Brazilian Jiu Jitsu is the basis for Mixed Martial Arts fighting. It promotes the concept that a smaller, weaker person can successfully defend themselves or another against a bigger, stronger, heavier assailant by using proper technique, leverage, and most notably, taking the fight to the ground, and then applying joint locks and chokeholds to defeat the opponent.
While Brooklyn has been around the sport all her life she has just begun to compete. She has been going to tournaments for a little over a year, Emily said. She had advanced very quickly and surprised many with how quickly she has progressed.
The Prince family has traveled to tournaments in West Virginia, Ohio and Indiana and plans to compete in the national tournament in California in the late fall. There is a national tournament coming up this month, but Brooklyn is not ready for it just yet, Emily said.
Tournament matches for youth are set up when the competitors have weighed in. The classes are divided up by weight and age. Emily said there is never any pressure to make weight like there is in wrestling.The International Brazilian Jiu Jitsu Federation has unified the scoring system.
Emily said the matches in a tournament could last as long as 5-6 minutes depending on the format. Competitors earn points or end the matches upon submission.
“I like the longer matches because it is more difficult to get submission in the shorter matches,” Brooklyn said. “Winning a points match is not as much fun. I want my opponent to tap out [submit].”
Emily said the scoring is similar to a wrestling match. Competitors get points for technique, but submission is the same as a pin, it cancels the points.
Brooklyn has won six silver medals in her last six tournaments over the last six months. Emily said she will earn a gold medal in the near future.
Brooklyn is not training as much right now to give her body a chance to grow and prevent burnout. She is training three hours a week right now, but she will go back to six to eight hours a week before long.
Brooklyn also suffered a concussion six months ago. She was picked up in an illegal move and slammed to the mat. Emily said just like any sporting event, some of the tournaments are run better than others.
Brooklyn currently weighs 98 pounds and said she weighed between 85 and 95 in the tournaments over the last six months. Her mom said she is going through a growth spurt right now.
At 10 years old Brooklyn has sponsors: Breakpoint and CK Fightlife. They pay for training, entry fees, gear and travel to the tournaments.
Both of Brooklyn’s parents are coaching in the new Carroll County Parks and Recreation wrestling program. Emily said they are so excited to have this program here. Brooklyn wrestled in the Oldham County Youth Colonels program. Randi Miller was her coach and she was a women’s wrestling bronze medalist in the 2008 Summer Olympics.
Emily said there are new women’s college wrestling programs and there are lots of college scholarships available. Emily described Brooklyn as quiet and artistic. She likes creating art and playing the drums. Her mom said she is a good student and is good at math and science.
Brooklyn said she also was becoming interested in animation. Brooklyn is in Samantha Abercrombie’s fifth-grade class.
“Brooklyn is so strongly determined in everything she does,” Abercrombie said. “When she develops an idea of how she thinks something should be, she works to make it happen.”
When asked if Jiu Jitsu training has helped with her focus and work ethic, Abercrombie said, no doubt.
“Brooklyn takes the time to see the fine details and reasoning behind things,” she said. “I absolutely believe her Jiu Jitsu training has helped her refine those skills.”
The Princes have four children. “The plan was to space them out every four years,” Emily said. “The second oldest is a daughter, Tristen, 7, a son Harper who will be three in about a week and the youngest son, Logan, who is one year old and was a slight surprise. All the children train with us.”
Emily summed up Brooklyn’s Jiu Jitsu training saying it is nice to know that your child is bully proof.
Local nonprofit brings summer camp to kids with Type 1 Diabetes in eastern Kentucky
(LOUISVILLE, Ky., February 5, 2018) The Anthem Foundation is teaming up with Camp Hendon, the Kentucky Diabetes Camp for Children, to bring a life-changing summer camp program for children with Type 1 diabetes to the eastern region of Kentucky. The Foundation’s contribution of $25,000 will support Camp Hendon’s growth and expansion from their current weeklong program at Camp Loucon in Leitchfield, KY to an additional week of programming at Aldersgate Camp in Ravenna, KY.
“Camp Hendon would cease to exist without the support of organizations like the Anthem Foundation. As a nonprofit, we rely entirely on donors and volunteers to keep our doors open and to provide kids with Type 1 diabetes the opportunity to learn how to manage their diabetes with more independence,” says Executive Director Megan Cooper.
Type 1 diabetes, also known as juvenile diabetes or insulin-dependent diabetes, is a chronic auto-immune disorder where the pancreas fails to produce insulin that is vital to processing sugar in the body. Improper management of Type 1 diabetes can lead to life-threatening complications. The “Diabetes Camp Matters” study by Dr. Jill Weissberg-Benchell at the Lurie Children’s Hospital of Chicago shows that attending three or more week-long diabetes camping programs can significantly improve outcomes for children battling the disease.
“What happens at Camp Hendon is more than just a fun week of summer camp,” explains Cooper. “We are connecting our campers with other kids going through the exact same struggle. At camp, they aren’t seen as ‘the diabetic’ because here they are just like everyone else. Not to mention the relief provided to parents for that one week out of the year.”
Anthem Foundation Program Manager Morgan Coleman says supporting Camp Hendon is a part of the Foundation’s Healthy Generations program. “The Anthem Foundation teams up with nonprofit organizations across the state of Kentucky that share our commitment to creating a healthier generation of Americans. Over the years, Camp Hendon has shown true dedication to their campers and families and the Foundation is proud to be a part of their growth.”
About the Kentucky Diabetes Camp for Children, Inc. dba Camp Hendon
Camp Hendon is a 501(c)3 nonprofit, tax ID 27-3619275. Our mission is to give children with diabetes life-changing experiences, empowering them to take control of their journey. 2018 summer sessions will take place from July 1 – July 6 at Camp Loucon in Leitchfield, Kentucky and from July 15 – 20 at Aldersgate Camp in Ravenna, Kentucky. Children ages 8 to 17 with diabetes are welcome and financial aid is available. Visit us online for more information at www.CampHendon.org. Connect with us on Facebook, Instagram, and Twitter.